Research details
Epilepsy, Intellectual Disability
A register for collecting and measuring outcomes of licensed Anti-Epileptic Drugs and Epilepsy treatments in patients with Epilepsy and Intellectual Disability and/or Pervasive Developmental Disorders
Participant type
Age: 2 years+
Rewards
Non applicable
Looking for
Non applicable
Study Type
In person
Key Documents
Overview
Summary
The EP ID Register study aims to learn how epileptic medicine works for people who have epilepsy and a learning disability. The information will help other people when they need new medicine for their epilepsy.
This study is no longer looking for new participants but is still ongoing.
What is the study about?
The EP ID Register study wants to learn how medicine works for people who have epilepsy and a learning disability. Epilepsy means a person has seizures. Seizures are sudden changes in the brain that can make someone shake or lose control for a short time. A learning disability means it can be harder for someone to learn new things or understand information.
What is the study trying to find out?
The study aims to understand how epileptic medicines affect people with epilepsy and a learning disability. It focuses specifically on how the medicines impact the intensity and frequency of seizures. The finding will be compared information collection for people with epilepsy who do not have a learning disability.
Why is it important?
Epilepsy affects 2-5% of the general population. Among them, epilepsy is more common for people with a learning disability. People with a learning disability also more commonly have other health problems and can respond to medication differently. Currently, there is no way of effectively evaluating the safety of anti-epileptic drugs (AEDs) for people with epilepsy and a learning disability. About 30% of all people with epilepsy continue to have seizures even if they take the medicines.
The study will develop a register of people with or without a learning disability who are taking AEDs. The information collected from the register will form databases. The databases could help confirm the safety of AEDs already being used and show if new AEDs are more or less helpful when they are available.
We hope that this study will help people when they need medicine for their epilepsy.
How can I find out more?
This study is no longer looking for new participants but is still ongoing.
However, if you have questions about this study please click the button below to email the research team:
Collaborators
