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Alzheimer’s & Dementia Equity, Diversity and Inclusion Carers

Exploring person-centred care, care environments and care planning for people with dementia from South Asian backgrounds (DEMSA)

Calling for participants until

30 Jun 2027

Participant type

Age 60+, Ethnicity: South Asian

Looking for

Older adults with a diagnosis of dementia, Unpaid carers

Study Type

In person, Interview

Overview

What is the study about?

We are talking to people from South Asian families. These are families from countries like India, Pakistan or Bangladesh. We want to hear their stories about dementia and care.

What is the study trying to find out? 

Dementia is when a person’s memory gets weaker. This can make it hard for them to remember things. They might also struggle with daily tasks. We want to hear stories from people in South Asian families who have dementia and also their loved ones. We want to learn how their culture helps. We also want to learn what is not helpful.

What does taking part involve?
  • A meeting with the team to hear more about the study
  • Choosing if you want to take part
  • You can choose to let us visit you a few times and see what your day is like, or talk to us in person, on the phone, or on a computer for about an hour.
  • You can tell us about your life stories, how dementia affects you and how you get help.
  • People who care for you can tell us how they plan care with doctors and nurses to help you.
  • Receive a £50 voucher
Who is it for?

If you are aged 60 years old and above and

  • You have a diagnosis of dementia
  • You identify as South Asian
  • You are a current or former carer for a South Asian relative or friend with dementia

Then we would like to hear from you.  

We hope to spend time with 8 people who have dementia. We will also talk with 15 to 20 people who have dementia and can talk with us. We will also talk to 15 to 20 people who take care of people with dementia.

 Why is it important? 

We want to find better ways to take care of people with dementia. This means making their homes and places where they live more pleasant and special for their culture. If someone likes certain foods or music from their country, we want to include these in their care. We also want to make better plans to help people with dementia when they go out, in their neighbourhood. This way, they can feel safe and happy.

How can I find out more?

You can find out more information about taking part in this study by downloading the key documents at the top of this page.

If you are interested in taking part in this study, or have questions for the research team, please email us at: r&d@nelft.nhs.uk 

 

Summary

Dementia is a health problem that makes it hard for people to remember things. We want to learn about people who have dementia from South Asian families. People with dementia often need help from others. We want to learn more about their helpers too. We want to know about their daily lives. 

Collaborators

Sponsored by

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