Long COVID resources

It is important to understand that currently there is no ‘quick fix’ for Long COVID and that the symptoms and their impact on day-to-day life vary greatly from patient to patient.  

There are however, many positive stories of patients recovering from Long COVID and improving their quality of life.

We have collated many great resources which we use to support patients both while you are waiting to and are accessing support from the Long COVID Team.

For ease of reference, we have organized these resources according to symptom, simply click the drop-down box below to view the relevant resources.

National resources

Your COVID recovery — Helps patients to understand what has happened and what they might expect as part of their recovery. Has a range of information on wellbeing such as eating and sleeping well, getting moving again and managing daily activities.

Long COVID.org — A patient support group with a range of resources and patient stories.

Lancashire COVID Patient Support — A resource that has been developed by a group of multi-disciplinary health professionals at Lancashire Teaching Hospitals. The purpose of the website is to support individuals with their initial recovery from COVID-19. It includes a range of exercises, advice and tips.

Post COVID.org — For people left with breathing difficulties after COVID-19, as well as their family members, carers, healthcare professionals, policy-makers and researchers.

Help with mortgages — Homeowners struggling to pay their mortgage due to Covid will be able to extend their mortgage payment holiday for a further three months, or start making reduced payments, in proposals published today.

Respiratory information

Adult Pulse oximetry Monitoring Covid-19 Diary — This animation will inform you about COVID, how to measure your oxygen levels (using a pulse oximeter), what the danger signs to look out for are and when to seek urgent help.

BLF, How will I recover? — Advice from the British Lung Foundation including what to do If you are breathless or need to clear your lungs.

 

Dietary information

The Patients Association Nutrition Checklist —  A paper-based tool to identify potential risk of malnutrition (as undernutrition) and offers guidance, advice and signposting on next steps.

Malnutrition pathway, COVID 19 — An overview with useful resources for patients and carers. Endorsed by the British Dietetic Association (BDA), the Royal College of Nursing (RCN) and the British Association of Parenteral and Enteral Nutrition (BAPEN).

Dealing with fatigue

Websites

Royal College of Occupational Therapists - Energy levels — The Royal College of Occupational Therapists (RCOT) website hosts a comprehensive resource on energy conservation strategies and techniques tailored to effectively manage fatigue.   Geared towards individuals navigating various health conditions or disabilities, the content offers invaluable insights into pacing oneself, optimi s ing daily activities for efficiency, and conserving energy to stave off exhaustion. Additionally, it delves into the pivotal role of occupational therapy in empowering individuals to enhance their energy levels and elevate their overall quality of life.

Royal College of Occupational Therapists - Lift up your everyday — The page from the Royal College of Occupational Therapists (RCOT) provides advice on managing energy to improve daily living, especially for those experiencing fatigue. There are videos from occupational therapists on conserving energy through planning, pacing activities, and managing sensory inputs such as vision and sound.

Long COVID fatigue support - Videos — Produced by NHS Hampshire and Isle of Wight.

Long COVID Physio - Fatigue— LongCOVID.physio  is a n online platform committed to offering comprehensive assistance and guidance to those with symptoms post COVID-19 infection. It focuses specifically on the physiotherapy aspect of managing these symptoms, offering guidance on exercises, rehabilitation techniques, and other interventions to help individuals recover from the lingering effects of COVID-19.

Videos

Bereavement support

The government has produced some support for the bereaved which contains Information to help bereaved families, friends or next of kin make important decisions. This has been translated into a number of different languages.

Thrive LND has put together a resource pack to support you if you are grieving the sudden death of someone close to you, or if you are supporting someone going through sudden bereavement. 

The Coroners' Courts Support Service has also produced a helpline leaflet and a bereavement support pack.

We have also produced a series of guidance packs to support people through the bereavement process, which is made even more challenging during the pandemic. There are three guides available, as follows:

How to prepare for the death of a friend or relative — Helps people understand what to expect when someone is near the end of their life, provides tips on practical care and information on where to go for further support. 

What to do if a friend or relative dies — Provides practical advice on areas such as arranging a funeral, looking after an individual’s personal affairs and caring for their pets. 

Where to go for bereavement support — A list of organisations for people to reach out for support at any stage of the grieving process. It includes national, local and specialist organisations, along with contact details. 

 

Brain fog

Videos

Managing brain fog when recovering from COVID — Produced by Cambridgeshire and Peterborough Post COVID NHS Service. This videos provides information  regarding managing brain fog when recovering from COVID.

Long COVID videos translated into community languages

A suite of information videos, including in Gujarati, Bengali and Urdu have been produced to support our communities get the support they need to help them recover from Long COVID.

The videos can be accessed using the links below:

 Gujarati

Bengali

Urdu